It is a new way to help kids with rare diseases.
There are 3 options to raise funds and awareness;
Your support and contributions show that the lives of those with Rare Diseases matter! Show your support while having fun.
1 in 10 Americans have a Rare Disease so you most likely know someone this issue impacts
50% of people with Rare Diseases are children.
30% of children with Rare diseases will not see their 5th birthday.
A condition is considered rare when it effects 200,000 people or less in the U.S.
82% of Rare Birth Defects have a genetic cause, 18% can happen to anyone.
90% of Rare Diseases have no FDA approved treatments